Today, Erica had her yearly appointment with the neurosurgeon. Everything looked good. Her "hardware was in tact." (What an awful thing to say about some one's child).
I told the nurse about my neurologist's theory about the bleeding in my brain out of earshot of Erica. She, in turn, told the neurosurgeon. Basically, if there are genetic factors to the bleeding in my brain, there is nothing he can do for Erica or Elizabeth for that matter. The blood vessels in the brain are so tiny and numerous. He said that we could do an MRA (fancy MRI) to check for bleeding, but then what? We can do nothing to stop it, prevent it so why know?
Okay, this is my baby's brain we are talking about. I can barely accept there is nothing they can do for my brain, but for her? SHE IS 7 YEARS OLD! He told me like there was a mole on her back or and ear infection.
So, again, I have a choice. I can live in fear of her bleeding in the brain or go on and not fear. How much more of this will we have to take. It is like a horror movie that does not end an gets worse with each scene.
Theoretically it is a miracle that any of us are here, alive, functioning, moving and surviving, given the scientific odds. God's grace gives us the chance to be on Earth so we can yearn for our real home-heaven.
Sunday, January 2, 2011
My daughter is 7 years old. When she was 5 she had a C1-C2 fusion. She told this story: " I met a girl yesterday. I told her that I had to have my head attached to my body. The girl said 'Wow'. My daughter continued. It's okay I am screwed now!" You have to laugh every once in a while!